A Port Lincoln based support group for women with endometriosis has been formed to help women identify their symptoms and receive advice and encouragement from people who have experienced the disorder.
Endometriosis Support Port Lincoln was formed in August by Sheryl King and Krista Sands after they saw the community’s need for a space to talk about the illness, which is caused by tissue similar to that which normally lines the uterus growing outside of the uterus.
Symptoms usually start around the time of a woman’s first period as the tissue spreads throughout the body, and can cause severe pain, fatigue, nausea, headaches, constipation, problems having sexual intercourse and infertility.
Miss Sands said she was left undiagnosed for 13 years after her symptoms started, something she wished no woman should have to deal with.
“I was told by doctors to just go home, have a couple Panadol and you'll be right,” Miss Sands said.
“It took a long time to understand what was wrong...I hope the cycle stops.
“My biggest fear is that young women will have a similar experience (to me).”
Miss Sands said the early management of endometriosis was key to reducing the severity of the disorder.
“The longer you leave it, the worse it becomes,” she said.
The group aims to have its first meeting in October and is still looking for a suitable meeting area.
If you would like more information about the support group contact Krista Sands on 0415 946 045.